Cure SPG47 Events

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Golf Tournament and Auction at The Riverton Country Club

When? September 12, 2017
Where? 1416 Highland Ave
Cinnaminson, NJ 08077

Overview: Riverton Country Club has generously agreed to host a golf tournament to benefit Cure SPG47 on September 12. A live auction will be held after the tournament. Players are welcome and corporate sponsorships are available. More information coming soon!!
Click here for details.

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Kendra Scott Charity Night

When? July 13, 2017, 6pm - 8pm
Where? 4130 Thistlewood Road
Hatboro, PA 19040

Overview: Join us for a Kendra Gives Back Party. Enjoy sips, sweets and jewels, 20% of the proceeds benefit Cure SPG47.
Click here for details.

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Kendra Scott Charity Night

When? July 13, 2017, 6pm - 8pm
Where? Kendra Scott at the Domain
11506 Century Oaks Terrace
Austin, TX 78758

Overview: Join us for a Kendra Gives Back Party. Enjoy sips, sweets and jewels, 20% of the proceeds benefit Cure SPG47.
Click here for details.

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Bake Sales & Raffles

When? June 4, 2017, 12:30pm - 4pm
Where? Fit Figures
224 N. Broadway
Salem, NH 03079

Overview: Fit Figures & TAC Admin Resources is hosting a bake sale and raffle on Sunday June 4th! Come join us to bring awareness and help fund research for Robbie and all the families. All proceeds from Bake Sale & Raffles will be donated to Cure SPG47.
Click here for details.

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Book Launch Party

When? May 13, 2017, 10am - 12pm
Where? Custom House Maritime Museum
25 Water St
Newburyport, MA 01950

Overview: The Adventures of Piratess Tilly is an award-winning children's picture book series written in haiku by Elizabeth Lorayne and illustrated in watercolors by Karen Watson. We hope you will come meet the author and help fund a cure for SPG47. Crafts, lollipops, raffles, and book signings will be available!
Click here for details.

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Cure SPG47 Medical Advisory Summit

When? March 7, 2017, 2pm - 5pm
Where? Center for Life Sciences
3 Blackfan Circle
12th floor conference room
Boston, MA 02115

Overview: The first face-to-face meeting of Cure SPG47 Board of Directors, Medical Advisors, industry experts and families affected by Hereditary Spastic Paraplegia, type 47 was hosted by Boston Children's Hospital Translational Neuroscience Center on March 7. The purpose of the meeting was to discuss and evaluate possible treatment options.
Click here for details.